The end to waiting
Friday night I got a call from my dad that went from cheerful to awful in the first 2 minutes — as a result of his long awaited EMG on Friday morning, he’s been diagnosed with ALS (Amyotrophic lateral sclerosis, better known as Lou Gehrig’s Disease). This is the diagnosis we didn’t want to hear, and it’s a shock.
Saturday morning, a package arrived from amazon.com – my copy of Harry Potter and the Deathly Hallows – all 700+ pages of it. It was so good to have one there in order to help me deal with the other – 13 hours of reading and occasional hugs from Sky and purrs from my cats was helpful. I was planning to go to a BBQ, but I couldn’t really move off of my couch.
What comes next? Don’t know, but I suppose I’m thankful that all of the waiting is over.
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Please use this form to email me with questions or comments. I'm pretty good about responding quickly. Unless it's a Wednesday.
jane_q_public
July 23, 2007Sorry to hear the news about your father’s diagnosis. It must be quite a roller coaster of emotion.
maladr1n
July 23, 2007Very sorry to hear that, Jen. :/
luzclarita
July 23, 2007Has anyone in your family ever had that diagnosis other than your father?
Jen
July 23, 2007None that I know of, but only 5-10% of ALS cases are hereditary. I’m going to get the screening done ASAP – they know which genome carries hereditary ALS now – just so I’ll know.
luzclarita
July 23, 2007I didn’t know that (the low hereditary percentage). Thanks for informing me. Hopefully the screening will help give you more information as well. The issue of potential hereditary problems loom so large in my life that I sometimes forget that many problems in the world are not genetic. Either way, it is huge news to deal with and I both wish strength and wisdom for you. Although I must admit that I am not good myself at dealing with news of illness at all, so I understand that it’s incredibly hard.
illustrated_lib
July 24, 2007I’m sorry honey. Hugs from me.
mamamantras
July 24, 2007Jen, I wish I could be there with some nice Sweet Tea and hugs. Do they know how advanced the disease is?
You know I’m here for you, and you can call me day or night.
cygnoir
July 26, 2007I’m so sorry, Jen. Please know that I’m thinking of you and your family, and anything I can do, I will.